On this page you will find some of our MPS families who have made themselves available as contacts in the provinces.

Talking to other parents can often be very helpful, especially for new families – especially in the early stages after the diagnosis. Information from doctors and from various publications has to be digested first, and the question is much more of interest: How can one even live with an MPS child?

Therefore communication between our members is very essential. Parents can support one another in many ways. It starts with someone listening and leads to practical advice on how to deal with that child. MPS parents have been through all of this – or they know someone who has been through it.

To make the first step towards personal contact with other families easier for you, you will find some contact addresses here. The families are sorted by provinces, but that doesn’t mean you can’t contact each of them.

According to the variety of mucopolysaccharidoses you are looking for a contact person for the special form that concerns you. The chairperson of the company can of course be contacted at any time.

Give us a call or click on the email address provided. Ask your questions, seek support, and let the communication flow

Shopping counts!

In addition, there are other ways of how to help MPS children when you do your shopping:

• Have you ever heard of amazon.smile?

This link is a donor link: smile.amazon.de is nothing else but the amazon you know. The same products, the same prices, the same service. Smile.Amazon is a simple way for customers to support a non-profit organisation of your choice without additional costs with every purchase.

Click the amazon smile logo, log in as customer and choose the aid organisation you want to support with your purchase. Amazon Smile started on 11 November 2016 in Germany and Austria: Amazon donates 0,5% of the sale price of its qualifying smile.amazon.de - purchases to the selected charity.

This is how amazon customers can support non-profit organisations with 0,5% via the amazon smile program.