MPS is rare. But MPS children are real – and need your help. Urgently!

MucoPolySaccharidoses (MPS) are congenital and slow-progressing metabolic diseases, which can be deadly, if left untreated. Due to a defective enzyme, certain metabolites (the mucopolysaccharides) cannot be broken down. When that happens, they build up and store in the cells thus destroying them, which subsequently leads to heavy physical and mental disabilities and severe suffering over years.

The symptoms range from skeletal abnormalities, dysfunctions of inner organs up to impairment of brain function. Some of the children go blind, most of them are hard of hearing and almost all are of small stature. The average life expectancy of an untreated MPS patient is 15 years.

Help us help!

Imagine a young family and their adorable little baby. It is developing just fine, learns how to walk and talk, is a ray of sunshine. But suddenly the happy child turns out funny, it becomes an uncontrollable whirlwind, hardly ever sleeps – there is definitely something wrong: diagnosis MPS! The biological clock runs backwards, the child is gradually losing its abilities like talking, walking and even swallowing. It is going to be fed via stomach tube and the parents are faced with the task of doing a 24/7 job caring for it…

What it means to live with MPS is beyond imagination. Therefore, these families do need our help. We don’t want to leave them alone, we do want to give them stability and support them on their way. The aim of MPS Austria is to provide in information, explanation, exchange of experience and financial aid – for the social insurance and the health insurance benefits are often not enough.

MPS families should not break down under all that pain and sorrow. Even a life with MPS must be worth living. We must see to it and that’s why we need your help.

Your help makes all the difference.

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